Friday, June 27, 2008

A quick update...

I just realised I need to update a few things...

Firstly I was lucky enough to be chosen to be in the final for the Scraptacular 2008 for Scrapbooking 4 Less - Toni's beautiful layouts saw her declared the winner. Congrats Toni and all the other entrants. It was a lot of fun!

Also my cousin and his wife have had a beautiful little boy - congratulations S&S on the birth of your beautiful boy. He is gorgeous.

Finally unfortunately our meeting with the team for the boys therapists, paediatrician and kindy was cancelled today. I had myself all prepared for today, but it wasn't to be. Makes me realise how in all my years in hospital I truly didn't understand how much the health system seems to give families the run around. But no use in complaining (any more than I have) and we just have to wait for another appointment... hopefully before the boys leave Uni (grin).

Oh and this is a layout of the boys visit to the Big Rocking Horse with a little friend of theirs :-)

Hope everyone has a lovely weekend,

Wednesday, June 25, 2008

Mitchell's Glasses

As promised here are some photos of Mitch with his new glasses. He is actually very good at wearing them, but now and then he rebels and you find them carefully placed on the bookcupboard or a table. They obviously are helping him because he doesn't squint as much and doesn't stand on top of the TV anymore.


Friday, June 6, 2008

Speech therapy update

Well a fortnight ago the boys had their formal speech assessment in preparation for the Development Unit Team meeting next month. And the abridged version is that both have been diagnosed with a severe receptive and expressive language disorder and they tested in the first percentile for their age, meaning that if 100 children were
tested 99 children would score better than them. I actually took this news in my stride (which surprised me) and I took the literature I was given and left the rooms.

My poor hubby is devastated - he said he thought that "one day the boys would be fine" and this has hit him really hard. I have tried to emphasise to him that they are still our two beautiful boys who are social butterflies and love life, but
it is hard. Mitch & Harry are of course oblivious and they told me they "did a good job" :-)

So now it just needs to sink in...

The Speechie was great and took ages to explain this all to me. She agrees with my belief that the boys have microscopic damage done to their brains as a result of the extreme prematurity (even though all CTs etc have been clear). And she explained that the problems the boys have with their speech can never be cured, but can be managed to varying degrees.

On a happier note - Mitchell has his glasses and he loves them. The firt time he put them one he turned around and said to me... "Mummy I can see. Now I can read books!". He is very good with keeping them on and carefully puts them on if they fall off. At this stage the only problem we have is when Harry and Mitch have a fight - then the glasses seem fair game :-(

If I get myself organised I will post a photo of Mitch with his glasses - he looks so grown up!

Sending much love to our family and friends.
Even though we may not be in touch often you are in our thoughts and hearts,
Love Lisa