Well today we visited our Neo for the last time and prepared for our transfer to a local paediatrician. The Neo commented on how well the boys were growing - they are now within the "normal" parameters for their actual age for height and head circumference and are only slightly underweight for their age. He thoroughly examined the boys and then dropped a bomb-shell that it is probable that both boys have Cerebral Palsy. I am absolutely gutted. I have always felt that the boys' gait was an issue - and have been comforted by the physio and Neo's belief that there was no indication of CP. But the Neo explained that by now he would expect that their stance and gait would have improved and that their coordination would be better. So both boys are being referred to a specialist and a paediatrician and from there we will know what the future may hold. So now we have a weekend of wondering. Of course my beautiful boys are just the same - loving, affectionate and dynamos - but now there is something hanging over all of our heads.
I am just so scared for their future...
Lisa
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12 comments:
No matter what label the "experts" place on your boys, they remain your precious boys filled with wonderment, potential and dreams. Hold on tightly to that and your boys will guide you through the scary parts.
Thank you Glenda for your kind words,
Hugs,
Lisa
Lisa-
While I am sorry about your heartwrenching and shocking news about your boys, I want to assure you that even if they do have cerebral palsy, they can still have a happy, fulfilling life. How would I know? I am a 37 year old lady who was born with CP. I would be happy to help you in any way I can. Feel free to contact me.
Your new supportive friend-
Shelly
sjweiss@mac.com
Oh Lisa my heart goes out to go and the shock must have been terible but with you as their mum those beautiful boys will be fine.:)
Lisa, I too am shocked, the boys can still live a very happy and healthy life, full of wonderment and enthusiasm, atleast you have them, to be part of your life, no matter how it affects them as they grow older.. All my Love Julie
Dear Shelly,
Thank you so much for your support and understanding.
Hugs,
Lisa
Dear Robyn,
Thank you for your kind words.
Hugs,
Lisa
Dear Julie,
Thank you for your support - it means more than you can know.
Hugs,
Lisa
Lisa I am sure your boys will amaze you and Kev yet again what ever is thrown their way. If there is anything i can do please let me know.
Airlie sends you all butterfly kisses xoxo
Fiona
Dear Fee,
Thank you,
Hugs,
Lisa
Lisa, I just found your blog as I was catching up on B.A.D.D. posts. I know full well the initial shock and grief that accompanies such blithe pronouncements from the doctor; we were told fairly early on that Nik has CP. He also has a host of other things which, while they pose challenges, (I won't lie!), don't take anything away from the beautiful, precious, happy boy he is.
As my father said to me when my son was diagnosed )just last week)with an immunodeficiency, "He's still the same boy he was yesterday. Now you just know a little more about him."
Your sons are still the same beautiful gifts from God that they were the day they were born. That doesn't change.
If I can offer any support, please feel free to contact me at niksmother@gmail.com.
OMG Lisa... I am so sorry to hear this. I am sure the doctors are thinking the worst case scenario. But please now that I am thinking of you and yours and sending you the biggest hugs you can all imagine..
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